Picture Exchange Communication System Basic Training dates are:

Auckland
Monday 26th and Tuesday 27th March 2012
Novotel Ellerslie, Greenlane Road East, Ellerslie, Auckland

Wellington
Thursday 16th and Friday 17th August 2012
Mercure Hotel, The Terrace, Wellington

Basic Training Workshop times are 8:30am to 4:30pm both days. To find out more information or to register please click here to download the flyer.

Autism NZ needs your vote!!

Autism NZ has been selected as one of the six charities for the Sovereign Sunshine February 2012 - Teenage advice and support. Your vote will help us! Please visit sovereignsunshine.co.nz/ to place your vote now!

Request for participants for ASD research

This is a NZ University Research survey into selective mutism in Autism and Asperger Syndrome.
The identity of the participant remains confidential and the research is to be used for statistical purposes. The survey will be available until October 2012. To participate in the survey please click here www.surveymonkey.com/s/HQ2CN7D

Autism NZ Bookstore Specials

Limited stock applies on some of these resources. To make an order for any of these items please click on the Buy Now price of the book/s or alternatively you can contact us on 0800 AUTISM (0800 288 476) for further information.

- The Everything Parent's Guide to Children with Asperger Syndrome By William Stillman   ~~Was $35.00~~ Buy Now for $26.00

- Perfect Targets: Asperger Syndrome and Bullying By Rebekah Heinrichs, Foreword by Brenda Smith Myles   ~~Was $49.00~~ Buy Now for $38.00

- Homeschooling the Child with Asperger Syndrome By Lise Pyles   ~~Was $51.00~~ Buy Now for $39.00

- How To Be A Friend By Laurence Krasney Brown    ~~Was $21.00~~ Buy Now for $15.00

- Different Croaks for Different Folks By Midori Ochiai   ~~Was $35.00~~ Buy Now for $22.00

- Parenting a Child With Asperger Syndrome: 200 Tips and Strategies By Brenda Boyd   ~~Was $41.00~~ Buy Now for $28.00

- I Need Help with School! A Guide for Parents of Children with Autism & Asperger’s Syndrome By Rebecca A Moyes   ~~Was $46.00~~ Buy Now for $30.00

- Tobin Learns to Make Friends By Diane Murrell   ~~Was $30.00~~ Buy Now for $20.00

Are apps the key to revolutionising autism learning?
By Phillippa Roxby, Health reporter, BBC News

“Veronica is six years old and severely affected by autism. She has significant learning difficulties and finds many social situations very difficult. She lost all her speech three years ago.

But in common with many other children like her, touch screen computers have provided a way of learning and communicating that plays to her strengths.

As a result, devices like iPads are fast becoming a 'must-have' for many families of children with autism”.
To view the rest of this article please click on the following link - www.bbc.co.uk/news/health-16534678

University of Utah and Google Seek Answers in Autism

Researchers use workshops to teach job skills and to learn more about families with children on the autism spectrum

Released: 10 January 2012
Source: University of Utah

These days, we hear a lot about the disorder of autism, but researchers at the University of Utah have created a program that helps kids with autism focus on building their skills and utilising an aptitude for visual-spatial thinking, computers and other electronic media.

One of the program participants is 12-year-old Christopher Charles, who was diagnosed with what’s now known as high-functioning autism when he was 18 months old. His parents started him in therapies early on, but hadn’t found anything that seemed to hold Christopher’s interest or accommodate his behaviours. Please click here to download the full article.

Eco Insulation Supporting Autism New Zealand

A privately owned New Zealand company, Eco Insulation Ltd has pledged to support Autism New Zealand and our members. Eco Insulation was born out of a desire to find environmentally friendly insulation products for New Zealand buildings. New Zealand wool was the solution, it's ideal natural insulation, not toxic, sustainable, and recyclable qualities, made it a pleasure to install. Eco Insulation’s commitment to excellence, innovation and the environment has seen them win a number of awards. To find out more about the products and services offered please go to www.ecoinsulation.co.nz.

Eco Insulation have pledged to donate $50 to Autism New Zealand from every retrofit or new house insulation package purchased by our members or anyone else wanting to show their support for Autism NZ. All you need to do is contact them on enquiries@ecoinsulation.co.nz or call (0800) 400 ECO and tell them that you want to support Autism New Zealand.

Multicoloured Mayhem Day 2012

Autism New Zealand would like to invite your school to take part in ‘Multicoloured Mayhem Day’ on Monday, 2 April, 2012 as part of celebrations for World Autism Awareness Day.

‘Multicoloured Mayhem Day’ has been run for several years with many schools throughout New Zealand taking part. It is similar to a mufti day but with the children and staff challenged to wear as many different colours as possible. It has proved to be a lot of fun for the schools involved and has helped to raise awareness of Autism Spectrum Disorders, which affect 1 in 100 people.

World Autism Awareness Day was created by a United Nations Resolution in order to shine a bright light on Autism as a growing global health crisis and recognise the importance of early diagnosis and intervention. World Autism Awareness Day is on 2 April which falls on a Monday in 2012 and we think that this would be a great opportunity to hold ‘Multicoloured Mayhem Day’ although you are free to move it to a more convenient day if that fits better with your school. If you have other ideas for events you would like to run then that is fine and we appreciate your support.

By asking students to make a gold coin donation or to seek sponsorship we can also raise funds to help Autism New Zealand to continue our work. The funds raised last year helped us to offer support and education to children and families throughout New Zealand and holding the events in schools went a long way to raising the awareness of autism and Aspergers Syndrome.

If your school would like to support Autism New Zealand in 2012, please let us know what you would like to do. If you want to make a display, we can arrange to supply you with posters, and any other material regarding autism and Aspergers Syndrome. We can also send you donation forms if you require them.

If you would like to take part or you have any questions about World Autism Awareness Day please contact Jon Boyer - National Marketing & Communications Manager jon.boyer@autismnz.org.nz

Waikato Branch Reopening

We are pleased to be able to report that we have been successful in our quest to secure funding and as a result the Waikato branch office is to reopen on 28 November. Please join us in welcoming the staff who will be working to support you and our other Waikato members:

Margaret Wood is the Waikato Field Worker. Margaret brings many years experience with ASD both in New Zealand and internationally and is looking forward to the challenge that this busy role will bring.

Fran Greenfield, who has worked through this period of recess will be familiar to many of you and will be continuing her work as the TAYAG and Holiday Programme Group Coordinator.

The branch address is 108 Grandview Road, Nawton, Hamilton and the phone number is (07) 846 3351.

Please join us at the branch offices on Tuesday, 6 December at 7.00pm to meet the team, see the new offices and have a talk about forming a new committee for the Waikato Branch. All members are welcome and we hope to see you there.

Online Questionnaire for parents, teachers, carers and music therapists involved with young people with Autism

A PhD candidate at the University of Roehampton (London UK) is undergoing a thesis focusing on how music can enhance speech production and understanding for children and young adults with ASD. As part of this research there is a questionnaire for parents, teachers, carers and music therapists, available at www.surveymonkey.com/adamreecemusic

The questionnaire is for parents, teachers, carers and music therapists involved with young people with autism. It should not take more than a couple of minutes to fill in, and looks at the role of music in the lives of children and young adults with ASD, and the affect music might have on communication for this population.

Please note when filling out the questionnaire, responses should be made which relate to one individual person, as opposed to people with ASD in general.

Two Half Ironman's for Autism NZ

Nick Ferguson is running two half ironman events in two weeks to raise funds for Autism NZ. Nick's son Daniel was recently diagnosed with ASD and was so pleased with the support and information he received that he decided to do what he could to raise money. To support Nick and Autism NZ go to www.fundraiseonline.co.nz/Nick_Ferguson/

Media Release 10/11/11 – Sunnybrae School

Media Release 10 November 2011

Call for Minister Tolley to Respond to Sunnybrae School

Autism New Zealand has today joined the growing call for Minister of Education, Anne Tolley to respond to specific concerns over the future of the Support Class at Sunnybrae School and others like it.

Sunnybrae has developed a highly successful education model which provides personalised support for children with special needs, many of whom have ASD.

Alison Molloy, Chief Executive of Autism New Zealand says, “We fully support the government’s desire for an inclusive education system and we see inclusion as meaning that all children have equal and fair access to education. We recognise that education for disabled children can be very complex. Sunnybrae’s Support Class is providing an education which acknowledges this complexity.”

“The parents, teachers and pupils involved in this programme have full confidence in the quality of support and education at Sunnybrae currently and it seems irrational to abandon something that is clearly working”, added Ms Molloy. “It seems strange that the Minister will not address the specific concerns of the parents and teachers over her decision to change the RTLB structure, effectively forcing the closure of this wonderful resource for their children. This seems especially strange given the Ministry’s stated strategy of making better use of specialist staff and taking a more focused approach to specialist teaching services for sensory needs students.”

Autism is a lifelong developmental disorder that affects a person’s behaviour, communication, socialising skills and sensory issues. It is called a spectrum disorder because it varies from person to person. It is estimated that 1 in 100 people have an Autism Spectrum Disorder (ASD) and the incidence appears to be rising worldwide – that’s an estimated 40,000 New Zealanders. Worldwide surveys have shown that parents of children with autism suffer the highest stress levels of any condition, including terminal illness. It occurs in all racial, ethnic, and social groups and is four times more likely to strike boys than girls.

Started in 1969, today Autism New Zealand has over 6,200 members made up of people with ASD, their family/whanau and health and education professionals. Autism New Zealand aims to provide support, resources and information on autism spectrum disorders to those with these conditions, their family/whanau, caregivers and professionals working with them.
Ends

Contacts

Alison Molloy, Chief Executive, Autism New Zealand
Telephone (04) 470 7616, (027) 242 2441 or email alison.molloy@autismnz.org.nz
Jon Boyer, National Marketing & Communications Manager, Autism New Zealand
Telephone (04) 470 7616, (027) 214 4765 or email jon.boyer@autismnz.org.nz

New President for Autism New Zealand

At the recent AGM, Glenys Fry was appointed as the new President of Autism New Zealand. Glenys has been a long serving board and committee member and brings considerable experience and energy to the role.

A Word From Your New President, Glenys Fry

“I would like to introduce myself to those of you I have not met. I am Glenys Fry, I live in Christchurch and am married to Chris. We have three children. Sarah and David are adults pursuing their own careers in Fashion and Engineering. Michael our youngest son is 19 years old and has autism. He currently attends a Special Needs Unit at Hillmorton High School however next year he will be finishing there so we will be moving into the world of Adult Services.

I have been part of Autism New Zealand for the last 15 years. I joined when Michael received his diagnosis at the age of 4. The following year I attended my first Conference in Wellington and was hooked into the organisation. I realised this was where I could learn all that I needed to know and gain the support I would require to help Michael achieve his potential.

My initial involvement was with the Canterbury Branch Committee as the member coordinating Coffee Mornings, later I moved on to administer the Holiday Programme with the assistance of two other committee members and later became Branch Chairperson for three years. I have remained on the Canterbury committee supporting others to lead and grow our branch and more recently as the person who spend hours compiling grant applications so we can continue to support families. In 2006 I joined the board and many of you will remember me from the period when I stepped in as President while Wendy worked for us.

My vision for Autism New Zealand is that we will become a strong leader in the ASD field and a well known organisation throughout the country. ASD needs to become more widely known and understood so we can deliver better outcomes for our children, young people and adults in all areas of life. We will all need to work together with a cohesive and targeted approach for this to happen and I invite you to come on board with that vision.

Finally I would like to thank Wendy for her tireless work as President. She is remaining on the Board for a further year and I am sure she will still be out there championing for ASD long after she finishes on the Board.”

Purchase a Piece of Art and Support Autism NZ

Auckland based artist Natasha Wheeler is supporting Autism NZ by donating $10 from the sale of any of her paintings from now until the 15th of December.

Natasha says “My son has severe autism and Autism NZ really helped me get my head around my situation and how to learn and help my child with the condition that he has. Autism NZ is a non-profit organisation and really needs as much help as we can give them.”

Go to www.natashawheeler.co.nz to view and order. All the artwork is hand painted on cotton canvas wrapped around a wooden frame.

Please let anyone know about this pre-Christmas sale!

Autism NZ AGM

Autism New Zealand’s AGM is to be held on the 5th Nov 2011, 4pm at Mercure Hotel, 345 The Terrace, Wellington and all members are welcome.
There will be a vote on a proposed new constitution and there have also been several remits to the proposed constitution received and these will also be voted on if the new constitution is adopted. If you cannot attend the AGM you are still able to vote on the constitution and the remits by using a Proxy Vote. All of the forms can be viewed and downloaded by clicking on the links below.
If you wish to vote please complete the relevant form/s and fax to (04) 470 7617 or post to National Office to arrive no later than 5pm Monday 31st October 2011.
• AGM Agenda – click here
• Proposed Constitution – click here
• Remits with board response - click here
• Proxy Voting Form – Constitution - click here
• Proxy Voting Form – Remits – click here

New Board Members Announced

There was very good response to the voting for Board members and we are pleased to announce that the following have been elected (or re-elected) to the Board. This will take effect after the AGM on 5th November 2011. We are pleased to welcome back John McKeown and Angela Arnold-Saritepe and also welcome Lachlan Mackay as a new member to the Board.

Autism NZ Bookstore Specials

We endeavour to provide our members with regular specials on relevant and useful resources. To join our regular enews on current specials and featured products please contact us on 0800 AUTISM (0800 288 476) or email us on info@autismnz.org.nz. Our current specials are:

Asperger's Syndrome A Guide for Parents and Professionals By Tony Attwood ~~Was $40.00~~ Now $28.00
Hints and Tips for Helping Children with Autism Spectrum Disorder: Useful strategies for Home, School and the Community By Dion E. Betts and Nancy J. Patrick ~~Was $41.00~~ Now $32.00

Too Safe For Strangers / Too Smart for Bullies By Robert Kahn (2002) ~~Were $19.00~~ each Now $20.00 for the set

Asperger Syndrome and Sexuality: From Adolescence through Adulthood By Isabelle Henault ~~Was $45.00~~ Now $32.00

If you are interested in purchasing any of the above items please click on the red purchase price where you will be led to the Autism Bookstore to purchase online. Alternatively you can phone us on 0800 AUTISM (0800 288 476) or email us at info@autismnz.org.nz.

Free Seminar in Auckland & Otago - Oct 2011

IEAG (Inclusive Education Action Group) is running two FREE seminars on Inclusive Education, one in Dunedin on the 20th October and one in Manukau, Auckland on the 27th October. For more information please click on the following links below to download the brochures or alternatively you can visit www.ieag.org.nz for more details.

- Inclusive Education Seminar Dunedin

- Inclusive Education Seminar Manukau, Auckland

This is a wonderful opportunity to hear leaders in the field of inclusive education and for educators, education support workers and parents to engage in discussion and work together on inclusion. Participants will come away inspired and with a whole lot of resources and tools.

Autism NZ Rules - Revised Constitution

The Board have met to consider submissions on the draft constitution. 4 were received, 3 representing organisations and 1 individual. As a result the Board have agreed to amend the primary Objects statement to better reflect the purpose of the Autism New Zealand. The Board are of the view that other concerns raised will be managed adequately within the wording of the existing draft which will now be submitted to the AGM on 5th November 2011 for consideration and approval by members.

To view the revised constitution please click here.

Any further requests for alteration must be made through the remit process under the existing rules/constitution (Rule 9.1) as follows:
“The Rules of Autism New Zealand (Incorporated) may be altered rescinded or added to by resolution passed by a two thirds (2/3) majority of the votes of the persons entitled to vote or by proxy at any Annual or Special General Meeting of Autism New Zealand. No such change of Rules shall take effect until confirmed by the National Executive (Board)”.

By way of process remits must be signed by two members of Autism New Zealand and submitted to the Chief Executive by 14th October 2011 so that they can be circulated to membership with the agenda for the AGM by 21st October 2011. The Agenda will be placed on the website by way of public notification.

Proxy voting must be in writing and signed by the member submitting the vote. Each member is entitled to one vote. Votes must be received by the Chief Executive no later than 10am Tuesday 1st November. Proxy votes may be faxed (04 470 7617), posted or hand delivered to:
PO Box 12599
Thorndon
Wellington 6144

One day seminar in TAURANGA 1st October

Evidence Based Strategies for the Management of Autism and Asperger's Syndrome

There is a dramatic increase in the number of children identified with autism spectrum disorders (ASD) worldwide. Many parents are desperate to find a 'cure' and/or remedial intervention to help their children. A number of popular treatments are offered to the public without scientific backing or empirical research support. Moreover, these pseudoscientific treatments tend to be associated with exaggerated claims of effectiveness that are well outside the range of established procedures.

One of the ways to avoid wasting valuable time, money and resources is to select evidence-based treatments and strategies validated by international research. This intermediate level course is intended to help teachers, educators, parents and other professionals to identify and learn about some of the 'evidence-based' strategies in the management of autism and Asperger’s syndrome.

Presenter: Dr Antony Thomas is a Registered Psychologist (NZ) and a Board Certified Behaviour Analyst-Doctoral (USA).

Times: 9am-5pm

Dates: Saturday 1st October

Fee: $75.00

Venue: Room AG.11, Tauranga Campus, 144 Durham Street, Tauranga

Enquiries: Phone 07 5775376 or email: nyree@waikato.ac.nz

Autistic Superstars – Prime TV Friday 23 September 7.30pm

An insightful documentary with a highly-produced event, presenter Reggie Yates seeks out a cast of talented young people with autism to perform at a major music event in London.
Part 2 of this documentary screens this Friday on Prime TV at 7.30pm.

Variety – The Children’s Charity Bike Giveaway!

Variety – The Children’s Charity is currently calling for nominations of deserving children to be recipients of bikes on its 2011 Bikes for Kids tour.

This year the Variety Bikes for Kids tour will be travelling from South Auckland through Cambridge, Taupo, Ruapehu District (National Park, Ohakune, Raetihi), South Taranaki, Porirua, Lower Hutt, Wairarapa (Carterton, Featherston), Hastings and Napier from 13 to 18 November. The tour will also start with an additional presentation to children in Christchurch on Friday, 11 November.

To receive a bike a child needs to be:

Aged between 7 and 9 years (between 111 cm and 135 cm tall)
A role model to other children OR
A child who has consistently made a difference within their school and community environments and has shown an outstanding ability to assist those around them OR
Socio-economically disadvantaged, with their family not in a position to purchase a bike OR
Have recently overcome some adverse circumstances

If you know of any children who fit these criteria and deserves a bike, please click here to download and fill in the attached nomination form or call (09) 520 4111. Completed forms can be emailed to helpkids@variety.org.nz, faxed to (09) 520 1122 or posted to Variety – The Children’s Charity, PO Box 17276, Greenlane, 1546.
Nominations must be received by Variety by 7 October 2011.

Free Book Offer

IHC has secured funding to offer a free book to all New Zealand families with a child with autism or an intellectual disability aged up to 12 years old. There are three books available and they can be ordered at http://www.ihc.org.nz/GetInformation/FreeBook/tabid/1762/Default.aspx (order on the right-hand side of the page).

Autism NZ Rules - Draft Constitution

The Rules of Autism New Zealand Incorporated have been re-drafted in consultation with a number of branches and are now available for wider member consultation. It is intended that your feedback will be considered so that the rules can be presented to the AGM on 5th November 2011 for adoption. Please provide any feedback to alison.molloy@autismnz.org.nz by 23rd September 2011.

A final draft will be put on the website shortly and any subsequent changes will be required as remits which must be signed by at least two Autism New Zealand members and provided in hard copy to REMIT, Autism New Zealand, P O Box 12599, Thorndon Wellington, before 5pm on 7th October 2011.

These remits will be circulated prior to the AGM so that they can be voted on if required. Only legally relevant remits will be put forward.

Please click here to download the Rules of Autism New Zealand Inc. To download the current Autism New Zealand Inc Rules please click here.

Election Year - Labour, Maori & Green Party Responses

Autism NZ election year questions to Thinking Differently - To view the Labour Party responses please click here. To view the Maori Party responses please click here. To view the Green Party responses please click here.

Support Autism NZ When You Sell or Rent a Property

Harcourts have announced a move to support Autism New Zealand and the work that we are doing in communities throughout New Zealand.

If you or someone you know is planning to sell or rent a property just call 0800 harcourts or email referral@harcourts.co.nz and they will get one of their local agents to contact you. If the sale or rental goes through then Harcourts will ensure that 10% of the commission for the sale or the first three months of property management fees come to Autism New Zealand.

This will cost you nothing but will make a huge difference to Autism New Zealand both in terms of national initiatives and providing support and services in your local area.

When you contact Harcourts let them know your name and contact number, the address of the property and if you have a preferred Harcourts agent.

Thank you to Harcourts for this support and please spread the word to your friends and family who might be considering selling or renting.

For more information please click here.

The "Mum & Baby" Group Baby Backs for Autism Awareness Portrait

When:       Wednesday 26th October 9:00am - 2:00pm

Location:   Function Centre - Wanganui Cooks Gardens
                St Hill Street, Central City
                Wanganui, New Zealand

This event is to photograph a group portrait of mum and babies in the same theme as Baby Backs for Autism Awareness to raise awareness of Autism Spectrum Disorders!

For more information please email info@babybacks.org.nz or visit the Facebook page http://www.facebook.com/babybacks

Media Release 22/8/11 - Arie Smith-Voorkamp

Arie Smith-Voorkamp Decision Welcomed by Autism New Zealand. To view the media release please click here.

Photographer James Price Launches ‘Baby Backs for Autism Awareness’

James Price is launching a new range of photographs aimed at raising awareness of autism.

For more information:
Website: www.babybacks.org.nz
Facebook: www.facebook.com/babybacks
Email: info@babybacks.org.nz
Phone: 021 860 084

Slingshot's Latest Offer

Half price broadband for six months!! Available for new broadband customers. To find out more information about this offer please visit www.slingshot.co.nz

Slingshot will donate 3% of your monthly bill to Autism NZ. Simply by having your home phone, internet or mobile services with Slingshot you can raise funds for Autism NZ. When you join Slingshot you can link your account to Autism NZ and Slingshot will donate a portion of your monthly bill to us. It won’t cost you anything, in fact, you’ll probably save money with Slingshot as they have very competitive pricing for all these services, plus, if you’re on dial-up you can get it for FREE with Slingshot.

To join Slingshot internet, homeline or mobile simply visit www.slingshot.co.nz/autismnz or phone 0800 89 2000 and make sure you let them know that you want to link your account to Autism NZ. They will make changing over easy.

Country and Western Concert - Palmerston North

Saturday 6th August 2pm

Wesley Methodist Church Hall, Broadway Ave, Palmerston North

$8 Adult $5 Child

Wagon Wheels Country Music Group present Drover’s Dream, a concert with around 20 musicians performing. Proceeds go to Autism NZ. For further information and ticket sales please contact us on 0800 AUTISM or Ian Franklin on 06 355 4868.

Turnstyles - Product developed by Jeli Toys

Children are innately programmed to spin.

When children are spinning, receptors in the vestibule of the inner ear are stimulated and communicate a sense of where the body is in space. This vestibular system controls the sense of movement and balance. For children, these abilities are still developing, spinning helps them become more complete and connected.

Spinning also stimulates the Cerebellum which aids with memory development and enhances the emotional centres.

Spinning is excellent brain food, this type of movement is part of a healthy sensory diet.

With Turnstyles they also learn to control their movements. They discover that by leaning forwards it goes faster, backwards slows it down and shifting their weight helps change direction.

Once they have mastered this, in one position, they change to a different one and learn this control all over again, hence the name "Turnstyles" from Jeli Toys.

Dimensions: 51L x 51w x 27h cm
Age: 2-3yrs,3-4yrs,5+yrs

Adult sizes are also available.

To view the product on You Tube please click on the following link: http://www.thewoodentoybox.co.nz/Products-Shop/Turnstyles-Video/

If you are interested in this product it is available for purchase through www.thewoodentoybox.co.nz

Autism Speaker Dean Beadle comes to YouTube!

Dean Beadle “After four years of speaking at conferences and events about my experiences of Aspergers Syndrome, I was very proud to give the opening speech at the Autism Cymru International Conference at Cardiff City Hall on the 21st June”.

The footage of the speech is now up on YouTube! This clip will inform, uplift, entertain and highlight the many positives of having ASD. The video has already been viewed in 11 countries worldwide and it’s only been online a fortnight!

The link is: www.youtube.com/deanbeadleuk
Or just search "Dean Beadle" on YouTube.

Team Raise Money “Tough Guy and Gal Challenge”

Six young supporters have raised over $1,400 for Autism New Zealand by participating in the “Tough Guy and Gal Challenge” at Linton Military base. The challenge involved running, walking and crawling through mud, pools of icy water, barbed wire, fences and tunnels. All team members have bruised knees and stiff joints but had a great weekend doing something that was out of their comfort zone. They set up a page on www.fundraiseonline.co.nz which made it easy for supporters to make donations. A big thank you goes to Dave, Miranda, Rob, Clem, Grace and Andy and to all of their supporters.

If you have a fundraising idea, contact Jon Boyer on 904) 470 7616 or jon.boyer@autismnz.org.nz

Sexy Backs for Autism Awareness

Last year Autism New Zealand produced a calendar using photographs produced by photographer James Price who was spurred to do something to raise funds and awareness for autism after his son, Tyler, was diagnosed. This year James is looking to take a new series of photos and will be making an announcement soon about what is next. For more information about Sexy Backs for Autism Awareness please email info@sexybacksforautism.org.nz or call James on 027 816 0816.

The Sexy Backs Facebook page http://www.facebook.com/sexybacks is very popular with fans in New Zealand, United States, Australia, United Kingdom, Canada, Germany, Ireland, Malaysia, Italy, Philippines, Romania, India, South Africa, Sweden, Belgium, Indonesia, Puerto Rico, Mexico, and France! In the past 7 days it has had almost 12,000 views!

Sexy Backs's Website: www.sexybacksforautism.org.nz
Autism New Zealand: www.autismnz.org.nz
James Price's Blog: www.jamesprice.co.nz
To hear from James’ son Tyler: http://www.youtube.com/watch?v=oEO3HhXBBfM

Geddes Software Solutions Seminars - August 2011

Auckland Seminars 11th & 12th August 2011

Christchurch Seminars 5th August 2011

Kapiti Coast Seminar 8th August 2011

Whangarei Seminar 10th August 2011

Numbers are limited to 20 participants to allow for individual support, so register early. Register at http://geddessoftware.com/seminars.htm
For more information contact Helen: Helen@geddessoftware.com, ph 03 453 6544 or 0212539321

Monday 18 July 9.05am Radio Discussion

Date: Monday, 18 July
Time: 9.05am
Channel: National Programme (radio)
Programme: Nine To Noon
Alison Molloy and Wendy Duff will be taking part in a discussion about respite and underfunding (a different viewpoint from the Sunday programme).

To listen to this Programme online please click on the following link: Families of autistic children face intolerable pressure
http://www.radionz.co.nz/national/programmes/ninetonoon/20110718

Sunday 17 July 7.30pm TV Programme on Respite Care/Funding Issues

Date: Sunday, 17 July
Time: 7.30pm
Channel: TV1
Programme: Sunday
Alison Molloy and Martin Wylie will be appearing in a programme talking about respite care and chronic underfunding for charities.

To view this Programme online please click on the following link: http://tvnz.co.nz/sunday/s2011-e20-video-4306555

‘The Brain in Autism’ - Saturday 9th July at 9.05am

Saturday 9th July at 9.05am, Kim Hill is interviewing Professor Erin Bigler on the National Programme. To listen to this Programme online please click on the following link: Erin Bigler: the brain and autism
http://www.radionz.co.nz/national/programmes/saturday/20110709

Erin D. Bigler is Professor of Psychology and Neuroscience at Brigham Young University, Utah, where current autism research focuses on genetics, imaging of brain development and immune system functioning. He is visiting New Zealand and presented one of the free public lectures in the Neurological Foundation of New Zealand’s Annual Appeal series: The Brain in Autism: Insights from the Latest Technology.
http://psychology.byu.edu/Pages/Faculty%20and%20Staff/Bios/ErinBigler.aspx

Being Matt Frost - TV Programme

The TV One show, “Attitude” followed our Research and Policy Analyst, Matt Frost for four days to get an insight into what its like to have ASD. They explored through the eyes of Matt both the fantastic things about ASD and also some of the challenges which go with having Asperger Syndrome. The results may surprise you!

To view this Programme online please click on the following link: Being Matt Frost

Date: Sunday, 24 July

Time: 8.30am

Channel: TV1

Programme: Attitude TV

Episode Title: Being Matt Frost

Autism New Zealand Respite Care Results

The results from the Autism New Zealand Inc Respite Care Survey, 'Respite Care: The views of families and whanau of people with ASD' are now available from here.

Stupidly Tough for Autism NZ

Miranda Grange a young professional from Wellington has organised for herself and her friends to participate in The Tough Guy and Gal Challenge Palmerston North on 16th July to help fundraise money for Autism NZ. To follow her progress or to donate please click on the following link: http://www.fundraiseonline.co.nz/stupidlytough/

CCS Disability Action Survey

CCS Disability Action has a new research project called Families Choices. They have put together a survey and they are looking for parents, families and whanau or caregivers who have applied for ORRS funding under the criteria of ‘learning’ or ‘language use and social communication’ and have:

• been successful, or
• not been successful, or
• have a child/children no longer in the education system but did apply for ORRS funding in the past.

If you click on the following link it will take you to CCS's survey page:

http://www.ccsdisabilityaction.org.nz/Home/FamiliesChoices/tabid/1237/Default.aspx

To do the survey for real online you can go to https://www.surveymonkey.com/s/ZY3DL6C

This survey should only take 10-15 minutes to complete. The survey answers will be confidential and anonymous. The collected information will remain private – your name is not required.

Autism and the Justice System: Radio Interview with Alison Molloy CEO of Autism NZ and Simon Buckingham

Please click on the link below to listen to a radio Interview on Radio NZ on Autism and the Justice System, Alison Molloy CEO of Autism NZ and Simon Buckingham lawyer who is on the spectrum himself, both speak up on the issues with the justice system when it comes to people on the spectrum. They also speak about the issues with the police and how there needs to be more training for police and other justice systems.

http://podcast.radionz.co.nz/ntn/ntn-20110509-0927-Autism_and_the_justice_system-048.mp3

New Trust Set Up to Provide Care and Support Once Parents Have Gone

The Personal Advocacy Trust was set up by a concerned group of parents who had children with intellectual disabilities. The parents were wanting someone to look out for their children when they were no longer around to advocate for them. The Trust was set up & operates nationwide as a charitable organization. Head office is in Wellington. Parents enroll their child so that when they die an advocate is appointed to their child who will visits them monthly for the rest of their lives to befriend & support them & to ensure all their health & support needs are met. The advocates are volunteers so once the one-off fee has been paid by the parents (which can be staggered, or left in their will) there are no ongoing costs for this service. Advocates are interviewed & vetted by district advisors around the country-there are 4 in Auckland-who then continue to supervise them in their role as advocates.

Contacts for information or enrollment:
Verity Doak, National Director
patrust@paradise.net.nz
Phone (04) 385 9175
website : www.huttcity.com/patrust

Autism Groups Agree Key Messages for Election Year

In April, to mark World Autism Awareness Day, 17 groups and organisations who work to support those living with Autism in New Zealand met in Wellington. From this productive discussion has come three key messages that we, as a community, believe are important in this election year and beyond:

‘A right to my own life, my own way’
•    Are my rights the same as yours?
•    Access to support is not there
•    Living my life may not be the same as you living yours and that‘s OK
•    Respect for diversity
•    ASD has a culture of it’s own that is diverse and unique
•    My needs cross all areas of life

‘A simple pathway’
•    Provision of service which is accessed simply
•    Single point of contact
•    Intervention, investment and inclusion
•    Support as required across life to enhance quality
•    Development of services a person can choose from

‘Support today equals success tomorrow’
•    Enough trial, assessment, review
•    We will work together to make it happen
•    Investing in ASD now will have payback for the community in economic and social terms
•    Being proactive means action
•    Let’s get on and do

We ask all of our members and those with an interest or link to autism to consider these messages and to communicate them to politicians and those around you. By following and articulating these key messages we can all help to make New Zealand a better place for those with ASD.

Autism & Challenging Behaviour Seminar

Autism & Challenging Behaviour Seminar: Understanding, Preventing and Managing Challenging Behaviour within the Autism Spectrum. A Discounted Seminar Offer for Autism New Zealand Members.

In this new one day workshop Professor Rita Jordan will discuss how challenging behaviour in Autism is not a characteristic of a person, but rather the result of individuals reacting to environments. The reasons why challenging behaviour often arises in Autism will be discussed, including biological, psychological and social influences. Professor Jordan will discuss how challenging behaviour is often the result of difficulties in understanding self and others, poor communication and vulnerability to panic and fear.

Details:

CHRISTCHURCH: Monday 23rd May 2011. Riccarton Park, 165 Racecourse Road, Upper Riccarton
AUCKLAND: Thursday 26th May 2011. Ellerslie Racecourse Event Centre, Ascot Ave, Greenlane
WELLINGTON: Wednesday 1st June 2011. Westpac Stadium, Waterloo Quay

Time: 9:00am - 4:00pm each seminar

Cost: $189 : Price includes lunch & presentation notes. (This price has been discounted exclusively for Autism New Zealand members; please note your name will be will be checked against the Autism NZ database to confirm membership).
Non Autism NZ members can register at the full price of $210 via our website at www.compass.ac.nz

To register please click here to download the PDF flyer or click here to download the Word Document Flyer.

PBS Special "Autism Now" Series

"Autism Now” is a six-part series. It’s described as “the most comprehensive look at the disorder and its impact that’s aired on American television in at least five years.”

In the first of six reports in his Autism Now series, former NewsHour anchor Robert MacNeil takes viewers on a visit with his 6-year-old grandson, Nick, to see how autism affects the whole family. Nick experiences autism not just as a brain-development disorder, but also as physical ailments affecting his whole body.

To view the first video of the "Autism Now" series please click here. If you wish to follow the series as it unfolds please do so in the coming weeks via YouTube.

New Movie Featuring Autism Released in US

There is a new film that has just come out in the US:
http://flyawaymovie.com/

A powerful film directed by Emmy Award® winner Janet Grillo (Autism: The Musical), FLY AWAY narrates the story of Jeanne (Beth Broderick, Bonfire of the Vanities, Sabrina the Teenage Witch) and her autistic teenage daughter, Mandy (Ashley Rickards, One Tree Hill). Jeanne has cared for Mandy since the day she was born, growing closer every day to a child who is charmingly offbeat one moment and nearly impossible to manage the next. In the dog park, Jeanne encounters Tom (Greg Germann, Ally McBeal, Friends with Money), an easygoing and accepting neighbour who sparks a romantic interest, but she finds juggling Mandy's care and her own career leaves little room for a new man. As the pressures of work and her child's needs increase, she must decide whether or not to enrol Mandy in a therapeutic residential facility. Over the course of a few weeks, Jeanne is confronted with the most difficult decision a parent can make: to let go, allowing her child to grow, but also grow apart; or to hold on tight and fall together.

Secretary General of the United Nations, Ban Ki- Moon’s video message for World Autism Awareness Day

To view Ban Ki-Moon's video message please click here.

Please note: This message from Ban Ki- Moon has about 10 seconds of clip which shows graphic footage of autistic people being placed in cages. Autism New Zealand advises caution in watching the video message.

Special Offer from MedicAlert to Autism NZ Members Extended

Exclusive Offer - 20% Discount for Autism NZ members on new enrolment with MedicAlert. Offer expires 30th September 2011.

Click this button
and enter this promotional code: “AUT999”to commence enrolment.
(Valid when enrolling online for the first time with MedicAlert® - a Service Fee and Freight charge also apply)

Autism New Zealand endorses MedicAlert® and strongly recommends its service to clients
MedicAlert® provides a comprehensive service including:

24 hour Emergency Hotline service with nationwide and international access.
You can set up secure personal online access to your vital personal health information and login from anywhere in the world you have internet access.
You can also choose a Free MedicAlert® Emblem and receive a Free Wallet Card when you first enrol.
and much much more..

MedicAlert’s service is vital in an emergency

It can help protect and save your life in a medical emergency.
It is internationally recognised and trusted by clinicians and emergency services.
When you have confusing symptoms, it helps people in the community to indentify you need medical assistance.
It gives emergency services and clinicians vital and timely secure electronic access to your vital information, where ever you are found.
It helps emergency services identify the people who support you.
It can help reduce stress and anxiety when you need help from rescue and law enforcement personnel.

Find out more: Click Here
Make an Inquiry: Contact MedicAlert
Free Call: 0800 840 111 - during normal business hours of 8.30am to 5.00pm – Monday to Friday.

The words ‘MedicAlert’ and ‘Medic Alert’, and the ‘Logo’ device, are the registered trademarks of MedicAlert® Foundation. ManageMyHealth is the registered trademark of Medtech™ New Zealand.

Schools get involved in World Autism Awareness Day

The article “School celebrates talents of autistic people” was published in the Rodney Times.

Gulf Harbour School staff and students whole-heartedly embraced World Autism Day by having a mufti day and a special presentation last Friday.

"The school's mission this year is `be the difference'," special educational needs co-ordinator Jane Matson says. "The day is used as an opportunity to reflect on how students on the autistic spectrum impact our lives in a positive way.

To view the full article – click here.

“Don’t be scared of autism: mother" - Article in the Southland Times

The article “Don’t be scared of autism: mother”- was published in the Southland Times for World Autism Awareness Day.

The McAnelly family has been through a tough series of events in recent years following sudden changes in the personality of their youngest member.

Autism is a common enough learning and behavioural disorder but the pressure it puts on families is less easy to understand.

To see the full article – click here.

Support for World Autism Awareness Day – 2 April

Every year World Autism Awareness day is celebrated on 2 April. This special day was created by a resolution of the General Assembly of the United Nations and is supported by all member countries, including New Zealand.

This year schools throughout the country have been invited to celebrate by holding a ‘Multicoloured Mayhem Day on Friday, 1 April and we have received the following messages of support:

Rt Hon Sir Anand Satyanand GNZM, QSO
Governor-General of New Zealand
Message for World Autism Awareness Day
2 April 2011

Greetings in the languages of the Realm of New Zealand, in English, Māori, Cook Island Māori, Niuean and Tokelauan: Greetings, Kia Ora, Kia Orana, Fakalofa Lahi Atu, Taloha Ni.

It is with pleasure that I send this message to support World Autism Awareness Day on April 2.

I understand that Autism Spectrum Disorders, including Asperger’s Syndrome, affect more than 40,000 New Zealanders and their families, and so the practical support provided by organisations such as Autism New Zealand in parent education, support groups for people on the spectrum, and just being a listening ear is to be welcomed.

In 2008, when I accepted the Franklin Roosevelt International Disability Award on behalf of New Zealand at the United Nations in New York, I noted that the challenge before us was to move towards a real understanding of those living with disabilities. I added that it would be a less stressful process if we were prepared to get to know people as they are and not how we perceive them to be. Initiatives such as World Autism Awareness Day aim to increase these levels of understanding and awareness of people living with Autism Spectrum Disorders.

As Governor-General, I urge all New Zealanders to seek to gain a real understanding of the lives of people with autism and their families, and support them in the spirit of New Zealand’s long standing commitment to human rights for all people.

No reira, tēnā koutou, tēnā koutou, kia ora, kia kaha, tēnā koutou katoa.

Rt Hon Anand Satyanand, GNZM, QSO
Governor-General of New Zealand

Autism NZ videos about commonly asked questions around Autism Spectrum Disorders

Karen Brady and Matt Frost from Autism New Zealand share answers to commonly asked question around autism spectrum disorders.

1. What is Autism?

2. What if I think my partner has Aspergers Syndrome?

3. What is a diagnosis of autism?

4. Is there a cure for Autism Spectrum Disorder (ASD)?

5. Who is affected by Aspergers Syndrome?

6. What is Aspergers Syndrome?

7. What are the characteristics of Autism Spectrum Disorders?

8. How do you diagnose ASD?

9. Who is affected by Autism?

10. What are the main difficulties for someone with Aspergers Syndrome?

Boy Shaves Head to Raise Funds for Autism

Boy Shaves Head to Raise Funds for Autism Kip Simpson, a young Auckland man with twin brothers on the autism spectrum has decided to shave his head to raise funds and to celebrate World Autism Awareness Day. Follow this link to read his story and see how you can support Kip - http://www.fundraiseonline.co.nz/KipSimpson/

News from Canterbury

We have all been shocked by the recent events in Canterbury and the terrible loss of life and disruption the earthquake has caused. This disaster has affected everyone in the region including many of our members and staff. We are thankful that all staff are unhurt and we are currently trying to contact all of our members in the region.

The Autism New Zealand offices which house the Canterbury Branch and the national library and bookstore are now operational! The 0800 Helpline service is also up and running in Christchurch again.

If you are a member affected by the earthquake and you need help or advice regarding ASD, please call 0800 AUTISM (0800 288476).

If you would like to help individuals and families living with ASD who have been affected by this earthquake we would appreciate any donations of money or other assistance that you can provide. For donations please click on the ‘Donate Now’ button on the left of this screen and leave the message “For Canterbury” in the message section and your donation will be sent directly to the Canterbury Branch.

For any other assistance please call 0800 AUTISM (0800 288476).

Dance Movement Therapy Programmes for children on the Autism Spectrum

Upcoming Term 1 Dance Movement Therapy sessions will be limited in size, in order to give individualised therapeutic interventions to each child, within a group context.

To view further information about the groups and about Dance Movement Therapy please click here to download the PDF brochure. To view the Dates and Times for Term 1 2011 please click here.

Also note, additional sessions may be offered on another after school day, or weekend, depending on interest- if you are interested in attending but none of the current times work for you, please contact Anaia.

Dance Movement Therapy is now offering North Shore Classes one day a week!

Classes begin 11th Feb in Mt Albert and 17th Feb on the North Shore.

To register, or find out more, please contact Anaia.

Anaia Treefoot MA AT
Dance Movement Therapist
021 184 9676
anaia@xtra.co.nz

Musicians with intellectual disabilities in NZ

Heavy Laod is a band from the UK which is made up of musicians with and without learning/intellectual disabilities. In 2008 a documentary was made about the band which gave them a lot of press and as a result they wanted to showcase other bands and musicians like them, so they brought out a CD comp called Wild Things, and last year they brought out CD2 which featured musicians from around the world.
This year they are collating the 3rd CD and want to see if there are any musicians in New Zealand who would like to put themselves forward.
Here's a link to their band so you can find out more about them
www.heavyload.org
www.heavyloadthemovie.com

If you think you might be interested and want more details please contact:
Paul Richards
Tel: 01273 405840
Fax: 01273 405801
Email: p.richards@southdownhousing.org

Stevens Homeware Stocking the Autism Candle

You can now purchase the Autism Candle at over 30 Stevens Homeware Stores nationwide. With $8 from every sale being donated to Autism New Zealand this is a great way to support the organisation and get a great candle for yourself or for a gift. The Autism Candle is made by Candles of New Zealand from 100% natural soy wax and infused with coconut and lime. Click here to find the Stevens Homeware store closest to you http://www.stevens.co.nz/stores

Schools Invited to Join Multicoloured Mayhem Day

2nd April has been declared World Autism Awareness Day by the United Nations and to mark the event we are inviting New Zealand schools to participate in Multicoloured Mayhem Day on Friday, 1 April, 2011.

Your school can have fun while raising awareness and funds for Autism. Multicoloured Mayhem Day is like a mufti day only bigger! Everyone is encouraged to wear as many different colours as possible. Click here to download an information pack.

Staff at Halswell Residential College Receive Certificate of Appreciation

Robyn Young from Autism New Zealand’s Canterbury branch attended an assembly at Halswell Residential College this month to present two Certificates of Appreciation from the organisation to staff of the college. Both teacher Maree Edwards and staff of Te Awa Villa were nominated by a parent for their wonderful work with children on the autism spectrum. The nomination was supported by Principal Paul Kennedy and by the Canterbury Branch of Autism New Zealand.

If you know of anyone whose exceptional work with those with ASD deserves to be recognised with a Certificate of Appreciation please send your nomination to your local branch of Autism New Zealand along with the name of someone else who can support your nomination.

Autism New Zealand Announces Endorsement of Logical Toys in Extraordinary Move to Support Members

Media Release - 11 November 2010

“Logical Toys has provided top quality educational toys and learning resources in New Zealand and Australia, since 1991 and we have awarded the Autism NZ endorsement for an impressive selection of their games and toys”. Autism NZ’s Marketing & Communications Manager Jon Boyer announced today. This is the first time Autism NZ has endorsed educational toys.

Autism New Zealand Inc. provides support, training, advocacy, resources and information on Autism Spectrum disorders including Aspergers Syndrome. Members include children, young adults and adults on the autism spectrum; their family/whanau; caregivers; and professionals who work within this field.

“Earlier this year our organisation began a rigorous assessment process to identify a range of toys that meet our specific criteria. This will enable us to provide members with a recommended range of toys that provide both teaching and learning benefits, plus are plain old good fun. Logical Toys provided us with a wonderful range.”

Logical Toys Managing Directors - husband and wife team Heidi and Mark Heyman were thrilled with the confirmation of the endorsement announcement. “We’ve been working extra hard to provide meaningful toy recommendations for Autism NZ. One of our long term goals is to offer valuable learning resources and information specifically for children with special needs, - and in so doing we will expand the overall educational quality of our toys in New Zealand.” Said Heidi.
“This takes us one step closer to achieving that vision. We will continue working with Autism NZ and other learning organisations to add to our range of endorsed products”

All Logical Toys sales are supported through a network of sales agents and distributors throughout New Zealand and can be viewed on-line at www.logicaltoys.com

Logical Toys Endorsed by Autism NZ:

Bubber
Moon Sand
Child Friend Counting and Learning Boards
SMART Logic Games
Learning Journey Puzzles
4-Way Countdown
Playroom Card Games
Superstructs
Pentago
IQ Cabin and IQ Puzzler

A percentage of sales of these toys is donated to Autism New Zealand.

IMAGES OF ALL PRODUCTS AVAILABLE ON REQUEST

Contact for more information:

Heidi Heyman, Logical Toys
Tel: (09) 414 4105
sales@logicaltoys.com
www.logicaltoys.com

Jon Boyer, Autism New Zealand Inc.
Jon.Boyer@autismnz.org.nz
Tel: (04) 470 7616
Fax: (04) 470 7617
Mob: 027 214 4765

Study Reveals How Autism-Risk Gene Rewires the Brain

Released: 02 November 2010
Embargo expired: 03 November 2010
Source: University of California, Los Angeles (UCLA), Health Sciences
Many gene variants have been linked to autism, but how do these subtle changes alter the brain, and ultimately, behavior?

Using a blend of brain imaging and genetic detective work, scientists at UCLA’s David Geffen School of Medicine and Semel Institute for Neuroscience & Human Behaviour are the first to illustrate how a gene variant tied to autism rewires the brain. Published in the 03 November on-line edition of Science Translational Medicine, their discovery offers the crucial missing physical evidence that links altered genes to modified brain function and disrupted learning.

“This is a key piece of the puzzle we’ve been searching for,” said co-principal investigator Dr. Daniel Geschwind, a professor of neurology and psychiatry who holds UCLA’s Gordon and Virginia MacDonald Distinguished Chair in Human Genetics. “Now we can begin to unravel the mystery of how genes rearrange the brain’s circuitry not only in autism, but in many related neurological disorders.”

The UCLA team scrutinised the differences in brain connections and function that result from two forms of the CNTNAP2 gene, one of which boosts risk for autism. Earlier studies by Geschwind and others demonstrated that the gene is most active during brain development in the frontal lobe. The region is highly involved in learning, which is often disrupted in autistic children.

Suspecting that CNTNAP2 might influence brain activity, the researchers used functional magnetic resonance imaging (fMRI) to scan the brains of 32 children as they performed learning-related tasks. Half of the children had autism, and half did not.
The team’s goal was to measure the strength of various communication pathways in different regions of the brain as they connected with one another. The fMRI images excited the scientists – and confirmed their suspicions.
Regardless of their diagnosis, the children carrying the risk variant showed a disjointed brain. The frontal lobe was over-connected to itself and poorly connected to the rest of the brain. Communication with the back of the brain was particularly diminished.

“In children who carry the risk gene, the front of the brain appears to talk mostly with itself,” explained first author Ashley Scott-Van Zeeland, now a Dickinson Research Fellow at Scripps Translational Science Institute. “It doesn’t communicate as much with other parts of the brain and lacks long-range connections to the back of the brain.”

Depending on which CNTNAP2 version the child carried, the researchers also observed a difference in connectivity between the left and right sides of the brain. In most people, the left side processes functions tied to language, such as speech and understanding.
In the children with the non-risk gene, communication pathways in the frontal lobe linked more strongly to the left side of the brain.

In children with the risk variant, communications pathways in the front lobe connected more broadly to both sides of the brain. The unusual symmetry suggests that the gene variant rewires connections in the brain, perhaps explaining why this version of CNTNAP2 is associated with delayed speech.

“We saw that if you had the risk variant, your brain showed disrupted activation patterns whether you were diagnosed on the autism spectrum or not,” explained co-principal investigator Susan Bookheimer, a professor of psychiatry who holds the Joaquin Fuster Chair in Cognitive Neurosciences. “We suspect that CNTNAP2 plays an important role in wiring neurons at the front of the brain, and that the risk variant interferes with that process.”

By enhancing understanding of the relationship between genes, the brain and behavior, the UCLA finding could lead to earlier detection for autism, and new interventions to strengthen connections between the frontal lobe and left side of the brain.

“If we determine that the CNTNAP2 variant is a consistent predictor of language difficulties,” said Scott-Van Zeeland, “we could begin to design targeted therapies to help rebalance the brain and move it toward a path of more normal development.”

Researchers could test whether specific therapies actually change brain function by measuring connectivity of patients before and after therapy, she added.

The authors emphasized that the patterns of connectivity found in the study still fall along the spectrum of normal gene variation. “One third of the population carries this variant in its DNA,” noted Geschwind. “It’s important to remember that the gene variant alone doesn’t cause autism, it just increases risk.”

Led by the UCLA Autism Center of Excellence, the research was supported by grants from the National Institute of Child Health & Human Development, National Alliance for Autism Research, National Centre for Research Resources, Autism Speaks, Whitehall Foundation, Training Programme in Neurobehavioral Genetics and a National Research Service Award.
Other UCLA co-authors included Ana Alvarez-Retuerto, Lisa Sonnenblick, Jeffrey Rudie, Dara Ghahremani, Jeanette Mumford, Russell Poldrack, Mirella Dapretto and Brett Abrahams, now at Albert Einstein College of Medicine.

Global Communication Shutdown 1st Nov

Visit the website www.communicationshutdown.org to view the results and read the insightful stories from the autism community.

Special Education Review - "Success for All - Every School. Every Child"

To view more information on this please click on the following PDFS:

Questions & Answers

Fact Sheet

Public Response Summary

GPS Tracking Device

GPSTracking 4U have bought out a new, cheaper, product for parents to keep track of children who wander off. To find out more information please click here.

Young, Autistic and Stagestruck - TV Series screening in 2011

First episode screens Saturday 2nd April 2011 at 9.30pm on the Living Channel
It is 4 x 60 minute series.

Job Interview Tips!

Job Interview Tips for people with Asperger’s Syndrome and ASD related disorders By Richard Harris. To view the document please click here.

Autism New Zealand 2010 Conference - Celebrating Autism in New Zealand: Best living through informed practice

The 2010 Autism New Zealand conference was held on 10-12 September at Te Papa in Wellington. For those of you who were there we trust that you learnt a lot and enjoyed the experience. For those of you who could not attend, we hope you are able to make it to our next conference to be held in Auckland in 2012.

The following is a selection of notes and links from the conference – enjoy!

Tony Attwood Keynote Handouts for Families on the spectrum

Steve Den-Kaat's Presentation

'Moving to Manhood' Presentation by Prof Tony Attwood and Michelle Garnett

'School Interventions for the Primary School Child' Presentation by Danuta Bulhak-Paterson

'Emotion Management in the Young Child with Asperger's Syndrome' Presentation by Dr Louise Ford

'Strength for Support Focus on You!' Presentation by Kathleen Davey

'Asperger Syndrome and Intimacy' Presentation by Winnie Y P Lau

Website links suggested by MagnumMac:

http://www.riverfronttimes.com/2010-08-11/news/autistic-children-new-ipad-effective-portable-device-for-teaching-communication-social-skills/
iHelp for Autism: The iPad opens up new worlds for autistic children

http://momswithapps.com/2010/08/04/characteristics-of-great-apps-for-kids-with-autism/
Characteristics of Great Apps for Kids With Autism

http://www.usatoday.com/news/health/2009-05-27-iphone-autism_N.htm
iPhone applications can help the autistic

http://www.theglobeandmail.com/news/technology/personal-tech/apple/for-autistic-kids-idevices-are-life-changers/article1530164/
For autistic kids, iDevices are life changers

http://itunes.apple.com/au/app/moods/id293735911?mt=8
Moods is an application that keeps track of someone’s mood throughout the week/month

http://treetops.org.au/groups/
This site is rich with information and topics. Please take your time when going through this, there is a lot to take in

Get Your Thomas and Friends Bumper Sticker!

Just give a gold coin donation and get you special Thomas and Friends™ bumper sticker. Stickers are available from Autism New Zealand branches and from the Glenbrook Vintage Railway in Auckland from September.

Attend a Special Screening of Thomas' new movie Misty Island Rescue - Proceeds go to Autism New Zealand

Two special screenings will be held in Auckland and Christchurch. Go along, have fun and support Autism New Zealand!

A new Search and Rescue Centre is being built on the Island of Sodor. Super strong Jobi wood, from Hiro's homeland, is being used to make the Centre. Diesel is carrying the Jobi wood when disaster strikes. Thomas has to rescue Diesel from falling off a cliff and all of the Jobi wood crashes into the sea. As a reward for his daring rescue, Thomas gets to visit the mainland - his first trip off of the Island of Sodor. When the raft carrying Thomas becomes separated from its tugboat, he ends up stranded and alone and on the mysterious Misty Island. Thomas soon meets Misty Island's resident engines - three funny logging locos called Bash, Dash and Ferdinand. Thomas also finds that Misty Island has plentiful supplies of the rare Jobi wood! With the help of his new friends, Thomas attempts to find his way back to Sodor and uncovers more of Misty Island's mysteries!

Date: Saturday 18th September
Time: 10am
Venues: Auckland: Hoyts Wairau Park Cinema, Link Drive - Glenfield
Christchurch: Moorhouse Avenue Cinema, 392 Moorhouse Avenue - Christchurch
All tickets are $6!

For screening details see:
http://www.hoyts.co.nz/Movies/Events/Thomas_Misty_Island_Rescue.aspx

THOMAS AND FRIENDS™ Unite With Autism New Zealand to Help Raise Awareness of Autism Spectrum Disorders

Autism New Zealand Inc. has announced a partnership with the world’s number 1 pre-school property Thomas & FriendsTM. The charity has joined forces with HIT Entertainment, one of the world’s leading independent children’s entertainment producers and rights owners, and Australian/New Zealand Agent, Haven Licensing, to help raise awareness about autism. This follows on from similar partnerships the famous children’s entertainment icon has formed with autism organisations around the world.

Research studies conducted in both Australia and the UK have demonstrated that many children with autism have a particular love of Thomas & Friends who is celebrating his 65th anniversary this year! Results from a survey of parents of children with autism, commissioned by Autism Spectrum Australia (Aspect) mirror that of a similar survey conducted by the National Autistic Society (NAS) in the UK. Findings for both studies revealed children with autism like Thomas & Friends more than any other children’s programme due to the characters’ clear facial expressions, which make them easy to identify. Parents also reported that Thomas & Friends helped their children understand the feelings and emotions of others which is an important step in assisting these children with developing social interaction skills and engaging with people around them.

“HIT Entertainment, Haven Licensing and Thomas & Friends are delighted to have the opportunity to work together to support Autism New Zealand and it’s endeavours and to build on the wonderful relationship Thomas has formed with other autism associations in the UK, Australia and HK,” said Mr Tom Punch, Managing Director of Haven Licensing, Licensing Agent for Thomas & Friends in Australia and New Zealand.

Autism New Zealand Inc Chief Executive, Alison Molloy, says, “This is a wonderful opportunity for Autism NZ to generate greater awareness about Autism Spectrum Disorders through an icon in children’s entertainment. We know children with autism relate particularly to Thomas, and now we have the chance to build on that relationship.”

Temple Grandin Movie Scoops 7 Emmy Awards

(Reuters) - HBO again grabbed the most prizes at the Primetime Emmy Awards on Sunday, but the premium cable network's little TV movie "Temple Grandin" stole the thunder of its $200 million-plus miniseries "The Pacific."

"Temple Grandin," the decidedly uncommercial true story of an autistic woman who revolutionizes slaughterhouses, ended up with seven awards, including three acting honours. With 15 nominations, it enjoyed one of the best success rates.

Little glamour surrounded "Temple Grandin," which took about 10 years to bring to the screen. Its heroine, Grandin, on hand at the ceremony, was largely unknown to star Claire Danes and director Mick Jackson, both of whom won Emmys.

"I can't imagine any other broadcasting organization making 'Temple Grandin,'" Jackson told the Los Angeles Times in July. "On the face of it, it's a story about an autistic woman who can't bear to be hugged by her mother and who grows up to invent better slaughterhouses. You try pitching that in a meeting."

The film premiered on HBO in February amid rave reviews but little mainstream attention. A DVD was released in August on the heels of its Emmy-nomination haul. Julia Ormond and David Strathairn won Emmys for supporting roles.

Health Passport: Public consultation invite

The public are invited to take part in a Nationwide Public Consultation on the 'Health Passport' - a document designed to be used by disabled people when using hospital services.

Click on the following link to read a cover letter that explains this initiative and to download the draft copies of the Health Passport document.

http://www.hdc.org.nz/about-us/disability/health-passport-consultation

This is your chance to 'have a say' on a document that could improve the quality of health services received by disabled New Zealanders.

Please note that the feedback closes on Wednesday 15th September 2010.

Help us win $10,000 for Autism NZ Otago Branch

Sharon Bain – Our service support coordinator for Autism NZ Otago Branch has been nominated for being a “Kiwi Battler”. Kiwi Battler is about someone who has given lots of time and energy to a not for profit organisation while battling their own issues. Please read on and you will see why we believe Sharon is a Kiwi Battler, Sharon has made it through to be one of the five finalists for Otago, if Sharon gets the most votes (which are made online at www.kiwibattler.co.nz and then click on the Otago region, then make your vote) we will be lucky enough to receive $10,000 for our Autism New Zealand Otago Branch.

Sharon unselfishly gives hours each week to support families in Otago, not many people know but Sharon has had 9 Major Back operations and also is the parent of two boys. Sharon's son, Luke, was diagnosed with Autism Spectrum disorder at the age of 2. Since this time Autism has become her passion and her life. She has strived to do the best for her son and family and taken every opportunity to support Luke's learning and development. She has never let her health problems stand in the way of helping others.

Help me make Autism NZ Otago Branch and Sharon a winner!

To vote please visit www.kiwibattler.co.nz and then click on the Otago region, then make your vote!! Remember voting closes on 1st September!

What does ASD look like?

This is an excellent resource designed by New Zealand Guidelines Group to help identify autism spectrum disorder. Please click here to download the PDF document.

Breakthrough in Autism Diagnosis

Autism can be diagnosed with brain scan – study shows 90% success rate in detecting adult males with ASD, and researchers hope the simple technique will rapidly identify children at risk. To read more on this article click here.

Exercise based rehabilitation

Exercise based rehabilitation is scientifically proven to be a successful treatment modality for many health conditions including diabetes, chronic pain, musculoskeletal injuries (such as lower back pain), depression, anxiety, etc. It is best used as part of a treatment plan which can include other health professionals such as psychologists and nutritionists.

Over the past couple of years Caitlin has developed a gym based exercise based rehabilitation program for youth and operates as a private service provider. As part of the program, a section has been developed specifically catering for youth with Autistic spectral disorder (ASD) (mild to moderate severity). This includes both Autism and Asperger’s syndrome.

An additional program that has been developed also caters for youth with musculoskeletal injuries and sedentary diseases such as diabetes and obesity as well as those with dyspraxia and poor co-ordination and muscle tone.

The above mentioned programmes are focused on gym based rehabilitation and are run out of the YMCA - Pamunre lagoon leisure and fitness.

As with any service, it is important to ensure safety and benefit to the client. Below are some improvements that have been noted in the literature as well as observed over the course of the exercise program mentioned above.

•    Weight loss
•    Decreased risk of sedentary diseases
•    Increased social skills
•    Increased cognitive and academic functioning
•    Increased behavioural compliance (in all areas of life)
•    Decreased aggression
•    Decreased self stimulatory behaviors
•    Increased balance and co-ordination
•    Increased muscle tone
•    Resolved musculoskeletal injury and gait issues

If you would like to enquire further, please contact Caitlin Cobham using the details below:

Caitlin Cobham
Clinical Exercise Practitioner
BSc, PGDipSci (Exercise rehabilitation)

Email: RHBLT8@gmail.com
Phone: 09 5352791
Mobile: 021 1222 430

Air New Zealand Concierge Service

When travelling internationally there is now a service offered by Air New Zealand if you need some extra help. It is called International Airline Concierge and there is no extra charge. They say:

Imagine having someone to help you out with a little local knowledge when you need it - like where to find a good vegan restaurant in Downtown San Francisco, or the perfect latte in Auckland.
Someone who knows exactly where you're going,what you need and how to get it.
Air New Zealand is proud to offer our personalised International Airline Concierge service that is as unique as the country we call home.
On hand at the departure gate prior to boarding, during your flight, and upon arrival in your destination, an International Airline Concierge is available to ensure your travel needs are met right throughout your Air New Zealand journey.

Our friendly team of Airline Concierges can provide you with advice on:
•    Itinerary planning to catch those must-see sights
•    The amazing activities on offer at the destination
•    Airline processes and help with ongoing travel arrangements
•    A wide range of accommodation and rental car recommendations
•    Local restaurants to check out and the best shopping locations

Our International Airline Concierge service is offered on our long haul international flights throughout our Pacific Economy, Pacific Premium Economy and Business Premier cabins.

So how can an International Airline Concierge help you?
Please email Concierge@airnz.co.nz with your flight details if you have any questions or requirements for your international travel.

If you have any questions or requirements for travel on domestic, trans-Tasman or Pacific Island flights, please call Air New Zealand’s customer team on 0800 737 000 who will be able to discuss your requirements and add details to your booking for your day of travel.

Springfree Trampolines

“The Springfree Trampolines are the world’s safest trampolines, designed at Canterbury University by Doctor Keith Alexander. Doctor Alexander wanted to get a trampoline for his children, but after mentioning this idea to his wife got the response “trampolines are too dangerous and I don’t want one of those things in my back yard!” Keith having grown up with trampolines, still wanted a trampoline for his kids, but after looking into some injury reports due to his wife’s comments, could not agree more with the comment “trampolines are too dangerous”, the reports proved they were. The main causes (83%) of injuries on trampolines where from:

Falling off the trampoline
Impacting the steel frame
Falling through the spring system

The remaining 17% if injuries result from incorrect use of the trampoline, the majority being more than one person jumping at a time and colliding, and a very small %age from doing flips and summersaults.

Still believing trampolines were a fun and exciting piece of equipment to have in the back yard, Doctor Alexander wondered if he could make trampolines safer. After looking at the very basic principles of trampolines and many years of prototyping the Springfree trampoline was borne. The Springfree design has basically eliminated equipment induced injuries as there are:

No steel springs at the jumping surface, no way to fall through the springs
No steel frame at the jumping surface, no hard surfaces to impact
No way to fall off the trampoline, and no rigid enclosure poles to impact

The Springfree safety features result in a trampoline that is 83% safer than any other trampoline on the market and if the rules “one at a time and no flips” are applied the risk of the jumper being injured is virtually eliminated. The Springfree design has revolutionized the trampoline, parents and users now have the confidence that if there is a loss of control while jumping, the consequences will be minimal if nonexistent.

Springfree would like to offer all Autism New Zealand members a very exclusive $200 off any Springfree Trampoline model. You can see the different models we have at www.springfree.co.nz or at one of the many display locations throughout New Zealand. To place your order please call 0800 586 772 and mention to our friendly staff that you are an Autism New Zealand member.

Springfree New Zealand contact details;

PO Box 80117 Riccarton Christchurch
125 Blenheim Rd Riccarton Christchurch
0800 586 772
www.spingfree.co.nz
sales@springfree.co.nz

13 July 2010

Voice Advocacy Trust

A new and free advocacy service to the Rotorua area! To view the brochue click here. For further information please contact:
Mary Barnett
Advocate
1372 Hinemoa Street
P O Box 728, Rotorua 3040
Phone: 07 349 8566
Mobile: 027 558 6565
Fax: 07 349 0530
Email: mary@imaginebetter.co.nz

Guideline Supplementary Paper May 2010

New Zealand Autism Spectrum Disorder Guideline Supplementary Evidence on Applied Behaviour Analysis to view the paper click here to be directed to the link.

29 June 2010

Ironman for Cam

Follow the progress of a father looking to complete his first ironman to raise awareness of Autism. To view the site click on the link http://www.ironmanforcam.blogspot.com/

24 June 2010

Supporting students with Asperger's Syndrome at University? – a free online resource!

A free online resource pack has been released to help educators working in Higher Education support students with Asperger's Syndrome. Designed to be flexible, it consists of a series of help guides tailored to staff roles, a resource booklet with advice/ideas and a video interview with a former university student (who has Asperger's Syndrome) talking about his experience of university life. To access the free resource, please see:
http://www.heacademy.ac.uk/physsci/home/pedagogicthemes/accessibility/aspergerssyndrome
Although the resource is published by the UK Physical Sciences Centre and is aimed at those working in Higher Education in the UK, much of it should be useful for those teaching in other subjects. The printed version is currently only available to those working at UK universities, but the online version (which contains electronic versions of all the material) is freely available at the above web page for anyone who is interested.

22 June 2010

3 News TV - Britain bans doctor who linked autism to vaccine

The doctor whose research linking autism and the vaccine for measles, mumps and rubella influenced millions of parents to refuse the shot for their children has been banned from practicing medicine in his native Britain. To view the story click on the link http://www.3news.co.nz/World/Story/tabid/417/articleID/157415/Default.aspx

8 June 2010

CHRISTCHURCH – Mary Moody Respite Care (aged 5+)

For more information contact Carla on (03) 338 0252 (mobile)-021 252 3516 or visit their website on www.marymoodierespite.co.nz

June 2010

CHRISTCHURCH 2nd Generation Workshop 8 - 10th Oct 2010

This workshop is specially designed for adult siblings who are interested in being an important part of the support and guidance of their disabled brother or sister.

To register your interest, please download the Expression of Interest form or if you have any questions please call toll free 0508 236236 or email national@parent2parent.org.nz

3 June 2010

Open Door: Autism Documentary

The Open Door: Autism documentary is now available online - anyone can now watch it for free on the NZ On Screen website.

Open Door is a community-based TV series where groups or individuals make a documentary about an issue that concerns them. This episode on Autism features interviews with parents of young children with Autism Spectrum Disorder. The parents talk about how their children were diagnosed, how best to help them, how to be fair to their siblings, working with the school system, and dealing with public attitudes to Autism. There are currently around 40,000 New Zealanders diagnosed with Autism Spectrum Disorder. Click on the link to view the show http://www.nzonscreen.com/title/open-door---autism-2009

3 June 2010

CCS Disability Action - 'Make a mother's day' Campaign

CCS Disability Action has launched a TV campaign called ‘Make a mother’s day’ which will run until the end of July. The commercial features a real kiwi mum going about a typical hectic day with her disabled son and sibling. While many mums get a bit of a break on Mother’s Day, the campaign highlights there are thousands of mums caring for disabled children who need emotional and practical support all year round.

To make a donation and to hear more from Andrea, the mother from the TV commercial, along with other stories from New Zealand families who face the challenges of caring for a child with a disability, visit the campaign www.makeamothersday.org.nz

3 June 2010

Making it Work Discussion Forum

This new forum is part of the Journey to Work project initiated by CCS Disability Action and Workbridge. The online discussion forum is to provide a place for people with disabilities to discuss their experiences of education and employment. Click here to download a word document with more of an explanation and an invitation to participate.

20 May 2010

Touch Compass Dance Trust

Touch Compass Dance Trust will perform in the Concert Chamber at the Auckland Town Hall from 18-21 August, 2010. The show has an equal number of disabled and non-disabled professional dancers. The show is funded from Creative New Zealand and ongoing fundraising to meet production costs.

Touch Compass is a charitable trust that has been operating for 12 years, pioneering inclusive professional dance in New Zealand. The company has 4 trustees and 2 full time employees and has disabled and non disabled dancers. Touch Compass aims to challenge audiences' perceptions about what is dance and who can dance. The company produces professional, memorable and spectacular aerial performances, as well as community, youth and tutor training workshops.

Watch Touch Compass on youtube - http://www.youtube.com/user/touchcompass. To receive information about the schools performance please see www.touchcompass.org.nz or contact Catherine on catherine@touchcompass.org.nz or ph. (09) 550 6464

20 May 2010

Autism Spectrum Quarterly Magazine

The Autism Spectrum Quarterly delivers well written, practical articles on everyday issues.

Your subscribtion will bring what you'd expect from a professional journal aimed at parents and professionals, with:

• Articles by, for, and about individuals with ASD

• Focus on families and family issues

• Reviews of books and resource materials

• A spotlight on best practices: Each issue will feature an educator, clinician, or paraprofessional whose work on behalf of those with ASD has been exemplary.

• Tips and practical strategies for dealing with a variety of situations

• Internationally renowned advisory board ensures that the information conveyed is of the highest quality

Your subscription of this worthwhile magazine can be purchased at $NZ 65.00 a year.
To order this subscription online click here or email: info@autismnz.org.nz or Phone: 0800 AUTISM (288 476) for more details.

2010

Play Behaviour Survey for PhD student

Karen O’Brien who spoke at our conference last year has her research project underway.
Karen is now working on her PhD on autism in Brisbane, and she is planning to come back to NZ to test some participants. If you would like to assist Karen with this project your help would be greatly appreciated.

The initial survey here http://surveys.psy.uq.edu.au/asdplaybehaviour.survey will be included on our website.

Anyone with a child 4-12 with ASD can fill it in, they do not need to participate in any future research.

Karen O'Brien BSc, BA, PGDipSci, MSc
PhD Candidate
School of Psychology
The University of Queensland

Telephone: (07) 3346 7326
Fax: (07) 3365 4466
Email: k.obrien@psy.uq.edu.au
Web: www.psy.uq.edu.au/directory/index.html?id=1356

Free information on Autism Spectrum Disorders

Here's a FREE resource that may be useful to many people on the autism spectrum, as well as for parents, relatives, spouses, caregivers, and friends of people on the spectrum.

Midnight In Chicago, a tourism and cultural initiative that raises funds and awareness for autism, has produced a series of FREE informative podcasts designed to provide factually correct information to the public on ASDs.

http://mic.mypodcast.com/

Topics to date have included:

Autism, Asperger Syndrome and Autism Spectrum Disorders

AS and ASD Web Resources and Forum Communities

Special Feature Interview with Lewis Schofield (Thomas D. Taylor and Elyse Bruce talk with Lewis Schofield about Asperger Syndrome and more. This enchanting and enlightening interview covers a number of topics from his recent interview with world renown autistic author, Donna Williams to his views on life in general and quite a bit in between)

Asperger's Syndrome New Zealand - ASNZ

ASNZ is a small not-for-profit organisation run by and for Autistic people, specifically those with Asperger's Syndrome. The organisation is currently involved in representation, advocacy, information, listening, advice, referral, publicity and education from a consumer lived-experience perspective.
Website: www.asnz.exofire.net

The University of Auckland and Carers New Zealand C.A.N. Study

The University of Auckland in conjuntion with Carers New Zealand conducted a study called C.A.N. (Carers Assessment of Needs). The aim of this study was to assess the areas which will assist the carers; Reduce the number of people entering residential facilities because of carer stress; Improve the satisfaction of people living at home.

To view the report from this study please click here to download the Word Document.

Dr Diane Jörgensen,
School of Nursing,
The University of Auckland,
PO Box 92019, Auckland
Email: d.jorgensen@auckland.ac.nz

The Couch

The Families Commission set up The Couch to hear the views of New Zealanders on issues relating to families.

It is part of our wider community engagement programme in which we regularly seek feedback from families, as well as community groups and organisations, through forums and meetings.

The responses from our polls and questionnaires will help us in our advocacy work to improve services and support for families, and improve our advice on proposed government policies.

The Families Commission is an advocate for the interests of New Zealand families. We are unique because we are legislated to focus on families generally, rather than individual families or cases. Our role is to promote the interests of all families and promote a better understanding of family issues and needs amongst government agencies and the wider community. To do this, we need to understand the issues affecting families. We listen to families, and organisations involved with them, to hear their views.

We also promote, commission and publish research into family issues, and contribute to the government’s policy development processes on family-related issues.

Go to: www.thecouch.org.nz

Cloud 9 - Wellington

Cloud 9 Children's Foundation occasionally have a meet-up for Coffee and a Chat to discuss Childhood and Asperger's syndrome. Friendly ear guaranteed! Bring any info and ideas you have to share!

Call Bill on 04 232-4795 or email foundation@entercloud9.com for further information and dates. Office located at Tawa Community Centre.

Cloud 9
P O Box 51 176
Tawa, Wellington 5249
Website: http://www.withyoueverystepoftheway.com/

Halberg Trust Activity Fund

Kerri has explained how we can apply for Halberg Trust funding, all the forms are there etc...
I have accepted her offer to come and speak to us all at a Support meeting earlier next year as I know there will be a lot of interest....needn't be just swimming, could be any sport...so this could be a great step forward if we start to avail our children of this support, as they often need a long time to gain skills and this can be costly over time.

If people already know of Instructors or coaches who have the skills and patience for our children, then please let me know as I can collate them and spread the info to everyone. Sometimes it is just too daunting to explore it all on your own and even if someone is listed in, say the Yellow Pages, or even school teachers. they may not have a clue about Autism!!!!

So lets get active!!!!

Contact Jo (Hawkes Bay) for more details: jo.b@slingshot.co.nz

Who wants to go sailing then!!!? (Hawkes Bay)

Katy, who used to help on our Holiday Programme and works at Fairhaven:

"My partner Mark and I both sail and Mark has been involved in instructing before and is qualified to drive a rescue boat. There are sailing courses held regularly over 10 weeks, may be able to look into the possibility of having one/both of us as an extra support person especially for one of two of 'our' kids as part of a group, or doing a smaller group for just 'our kids'. the instructors are volunteers so there would be no extra cost there, there would be the standard course cost to cover and the small extra cost of taking out an extra rescue/coach boat.

If you think there could be an interest we will speak with the relevant people at the sailing club and see what possibilities are. Could be very exciting. I would love the oppertunity to get some of our kids out on the water."

Contact Jo for more details: jo.b@slingshot.co.nz

Bullies undermining educational rights

LANE NICHOLS - The Dominion Post | Thursday, 10 May 2007

Children's rights to a quality education are being undermined by bullying, harassment and under-achievement, according to a new report on human rights.

The Human Rights Commission reviewed how New Zealand schools fared at safeguarding children's universal right to education.

It found significant problems with bullying, discrimination and harassment, a lack of systematic human rights education, cost barriers, and disproportionate participation and success rates.

A coalition including the commission, Amnesty International and the children's commissioner is now calling on the Government to rewrite national education guidelines governing schools to ensure children's educational opportunities meet international rights standards.

A report released this week recommends amending the guidelines so New Zealand's obligation are made clearer.

The guidelines dictate what schools must provide for education basics like pupil-learning programmes, literacy and numeracy, and physical activity.

The report says schools and preschools should become "human rights communities" that help young people know their rights and responsibilities, respect the rights of others and learn to value diversity.
It calls for principles in the Universal Declaration of Human Rights to be made explicit in the country's education laws and policies.
Ministry chief executive Karen Sewell said she was yet to read the document. There were no plans to amend the guidelines.
Amnesty International executive director Ced Simpson said New Zealand fared well internationally on its human rights record and school achievement results. But an under-achieving "tail" were not getting the education they needed or deserved.

The recommendations, if implemented, would ensure educational rights and aspirations were made clear for pupils, schools and communities.
"Human rights are generally well respected in New Zealand. But if you just sort of accept that at face value, we ignore the human rights issues that do exist. For many New Zealand kids, there's poor access to an education that meets their needs."

A visiting British children's services official addressed yesterday's Education and Science select committee about a Hampshire schools' project that incorporates human rights principles into learning.

John Clarke said children as young as four were being taught about the United Nations Convention on the Rights of the Child.

It had resulted in less disruption and bullying, and improved academic results, he said.
"It's about teaching them that we all have rights, and because we have rights, we have responsibilities to respect the rights of others."

ASD Guidelines

New resources on autism spectrum disorder (ASD) are now available to help health and education practitioners recognise signs and symptoms of possible ASD, and decide what action to take. The information on this interactive website comes from the New Zealand Autism Spectrum Disorder Guideline (NZ ASD Guideline). These free resources can be viewed or downloaded at www.asdguideline.com

Featured Web-sites

A KIWI SITE FOR PEOPLE WITH ASPERGER'S
http://www.asplanet.info

A KIWI SITE FOR NEWS-STORIES-INFO-LINKS
http://www.humans.org.nz

Free pictures you can use to make visual schedules

This website: www.do2learn.com offers free picture cards, games, activities and a wealth of educational information tailored to special needs families and educators. If you are looking for pictures for instruction visuals - you can print them straight off the web!! The company offers some items available for purchase but it is well worth a look.

Kathy Gerard has contacted us and she has offered to send fliers to you may share within your support groups, schools or elsewhere. Her son is eleven years old with special needs and they live in Raleigh, North Carolina. Email her at kathy@do2learn.com if you would like her to send fliers or more information.

Otago based ASD Adult group for Aspies

Karen O'Brien has started an ASD Adult group online please click on the link below to join.

Try this one:
http://health.groups.yahoo.com/group/OtagoAspies/

“A.S.K.” (Autism Spectrum Kiwis)

“A.S.K.” (Autism Spectrum Kiwis) Trust is a New Zealand support group, with international links, run by and for adults on the autism spectrum. It is a charitable trust, whose prime role is as a support group, providing members with newsletters, a library service, opportunities to meet, and a resource of “insider perspectives”. For further information contact A.S.K. Trust, Box 4206, Christchurch, email info@asknz.net or view our new website, www.asknz.net

Training opportunity to help people with disabilty access information and communication technologies

Are you working in a paid or unpaid (volunteer) capacity in a whanau, hapu or community project which provides people with the opportunity to learn how to use information and communication technology?

The Unlimited Potential Learning Foundation (UPLIFT) is part of a worldwide Microsoft Unlimited Potential Grant Scheme, which aims to increase computer literacy amongst under served communities. This will be achieved by a series of free courses with the course content adapted to the specific needs of each community. In addition, Microsoft New Zealand has donated a large sum towards the provision of their software to non-profit organisations.

Applications from projects serving people with disability are considered one of the priority areas. This initiative has the potential to provide real opportunities for the disability community to develop information and communication projects and businesses initiatives.

Courses are available around the country. The application deadline for the first course in Auckland is 28 February 2006.

For eligibility criteria, application pack, course locations and dates, contact:
UPLIFT Whitireia Community Polytechnic, Private Bag 50910, PORIRUA.
Freephone 0800 944 847.
Email UPLIFT@whitireia.ac.nz
Website:
http://www.microsoft.com/nz/citizenship/giving/up/default.mspx#upgetinvolved

No Bully website

Bullying is all too often part of the way young people interact in our society and in our schools. Every school must recognise its extent and impact and take steps to stop bullying from happening. When bullying is ignored or downplayed, pupils suffer ongoing torment and harassment. Bullying can cause life long damage to victims. A school's failure to deal with bullying endangers the safety of all its pupils by allowing a hostile environment to interfere with learning. There is clear, unambiguous evidence that school action can dramatically reduce the incidence of bullying.

Telecom and the New Zealand Police have teamed up in New Zealand to provide information to parents/ caregivers, teachers and children about bullying. The website: www.nobully.org.nz contains useful information about the characteristics of bullies and their victims, and provides resources links to other related information. There is a 4 Teachers/Grown-ups section of the website aimed at teachers, parents and other caregivers.

Kia Kaha is a whole school approach to eliminate bullying. It aims to help schools create environments where everyone feels safe, respected and valued, and where bullying cannot flourish. This intervention consists of an Implementation Book Kia Kaha in Your School — a working booklet, (one for primary and one for secondary) which gives a step-by-step guide to putting the whole school approach in place, and four curriculum programmes.

The General Objectives of Kia Kaha are:

1. Students, parents, caregivers and teachers recognise that bullying and harassment are unacceptable and will take steps to see that it does not occur in their school.
2. Students, parents, caregivers and teachers will work together to create a safe learning environment, based on mutual respect, tolerance and a respect for diversity.

Schools should create a 'telling environment'. Every member of the school community must expect that bullying will be reported, and that it is safe to tell. Once a report has been made this must be acted on, in the way outlined in the school policy.

Bullying is never the victim's fault.
Nobody deserves to be bullied.

www.nobully.org.nz

Training Programmes

Autism New Zealand runs various training programmes for families, carers and professionals. Please see the training and conferences page for details on future training programmes.

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